Myelodysplastic syndromes (MDS) psychological impact

Although becoming ill is never anyone’s fault, it is common for people to experience feelings of guilt and blame about their illness. For example people might question whether they became ill because of something they did, or their ‘lifestyle’. Some people might think that they are a burden on other people because they need their help, or because they are not functioning as they once did. Although these thoughts are common, they are not valid. They can be part of people’s attempts to find meaning in the situation, but what they do is to make people feel bad and distressed about themselves.

Coping strategies:

• Write guilt and blame thoughts down and try to come up with more balanced and rational thoughts.
• Don’t dwell on these negative thoughts.
• Think about what you would say to a close friend or loved one if they were having these thoughts and feelings – and apply this to yourself.
• Make a conscious effort to be more compassionate towards yourself.
• Do some things which are comforting and soothing.